The Drs keep telling us that it is basically unheard of for Cody to have survived the expectations of his first diagnosis. We can only hang on to the hope that his brain isn't going to play by the rules this time either.
The recommendations of the Neuro Oncologist is to get Cody started on chemotherapy (Temodar). He has looked over a variety of clinical trails, and does not feel that Cody is a good fit for any of them at this time.
The plan for now will be:
Starting chemo in about 2-3 weeks after he's had some time to heal from surgery. We are planning on doing this in Sioux Falls. MRI's every two months to monitor stability or changes. They will use Temodar as long as it will take us and reassess changes as they come or as needed.
The magnitude of this diagnosis shakes me to my core, but we will not give up hope.
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