i needed this today.
**update**
last week thursday, i posted on facebook that cody had gone 2 weeks seizure free. he was also starting to wean off of the steroids. but on friday, things had already changed. cody had 2 seizures friday, 3 on sunday, and 1 on monday. a call went back into neurology. they increased the dose of one of his seizure meds as well as an increase in steroids again. they talked to oncology to think about a sooner rather than later mri. we already have an appointment this friday with his oncologist, so he felt it would be fine to wait and talk about an mri at the appointment.
i again, want to clarify what it means when i say that cody is having "seizures." in the past, i have blogged about cody having complex partial seizures. typically you can not even tell that he is having one. he describes it as feeling very "weird" or "out of it" for a few minutes. he is typically a little confused, has some tingling in his left arm/leg, and has a very strong metallic taste in his mouth. when it's over, he claims he just doesn't feel very good and is often tired.
also, if you haven't been on the blog yet to get a thank-you from cody and i for the benefit, you can find that here.
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