Friday, January 22, 2016

cody's chemo needed prior authorization from insurance, and we are STILL waiting on that. once that comes through, the pharmacy can ship the pills. the oncology nurse that we work with, is absolutely amazing. she answers all of our questions and literally keeps our medical life together for us. we couldn't do it without her!

it is absolutely driving me crazy that cody has not been on any treatment since november. i have joined a few glioblastoma multiforme (GBM) support groups on facebook. this has been both a good thing and a bad thing. it is very informative. it helps to hear others who share our same story and are living this same nightmare. but it is also very real. and can be very scary. 

cody and i went to see our therapist (whom we've seen in the past).  she is wonderful. we will continue to see her, both together and separately. through her facilitation, we've gained a better understanding of what both of us need to guide us through this journey. both cody and i need to talk more. to each other.  it's not fair, and it's not conversations we should have to be having at our age. but it's necessary.  i know some of you don't agree with this, and you don't have to. cody and i need to do what's best for us.  we both have to be very real and honest with each other.  if i can tuck these conversations away and not need them for years to come, what a blessing that will be. but if something happens, i'll feel i will have been prepared.


1 comment:

  1. Anonymous1/23/2016

    Holli I am so glad you are getting some much needed help to get both of you through this, both together and separately. I feel that would be good for any married couple even if there was not your problems. Communication is good especially with each other. I support you 100% on this. We all would like to see Cody get his Chemo, my prayers are more each day for you all. Love you all, hope to see you soon. Grandma

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