chemo: recommendations from duke were finally put into place and cody started his new treatment plan yesterday. they put him back on the 5/23 cycle of temodar. we ran out of his primary anti-nausea pills and forgot to refill them, so he tried his "back up" pills last night instead. yeah, that didn't work out so well. so we will be heading to sioux falls this afternoon and refilling that prescription.
neurology: cody had an appointment this past monday. we finally feel like we've got his medication on track and have gotten his seizures under control. he has only had two since his last appointment in november. however, and this is a big however, his mood and irritability is out of control. i'm not just talking a little out of control-we can deal with it-whatever, let's move on...we're talking, something needs to change! so here we go again and are going to try different dose combinations of both medications and see if we can start noticing a change. i'm not kidding here people. this is affecting our home life in a big way and something's gotta give. i get it, it sucks. medications are needed and there will always be side effects. but we just need to find what is going to work for us and make our life livable.
here is how you can pray: every fiber in my body feels like it's connected to low voltage electricity. i'm guessing this is anxiety. whatever it may be, it's not fun. i literally feel like i could crack at any second. i need prayers for peace. for myself and for the kids. also pray for the medical team as they continue working towards what's best for cody.
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